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Today Jeanette Harrison (the Clinical Specialist who worked with Ben at UCD) did a feeding evaluation on Ty and confirmed that he can swallow- but it is weak. His suck is stronger, telling us his desire to eat is stronger than his ability to do so. But the fact that he can swallow is great.

Last night he had two apneic episodes (he stopped breathing and they had to use the bag to give him oxygen) due to the fact he was refluxing some of his feeding and got overwhelmed. That is not so great. We have scheduled an "upper GI study" where they will put the dye in and watch how it goes down his esophagus etc. This will help us understand what kind of feeding tube will be best for him. There are several options we are considering- NG (in his nose) G-tube (like Ben has) GJ tube(one that allows the feedings to go in his stomach or lower in his stomach/intestines.) A lot of unknowns still. But overall he is doing well and the Doctors feel he has really improved a great deal over the week.

Jonathan did a great job of describing Ty's first day. I just want to add that during this first week of Ty's life I have noticed a few things that could be very significant. While he does have symptoms like Ben, he also seems way ahead of where Ben was at this time. When Ben was born, he required constant suctioning of his mouth to clear his secretions. Ty does not need this, in fact, while we do need to suction his nose for him, he seems to really be able to handle the secretions in his mouth. This does seem to indicate that he can swallow- though it may be very weak. Yesterday, I was with him for 5 hours and did not have to suction him once. He also can cough (protect his airway) and suck on a pacifier , Ben could do neither of those things. These are hopeful signs.

Ty seems to have woken up a little bit - the past two days when I have been with him he has been more alert and has started to have an opinion. He doesn't cry like the other babies in the NICU - his cry is soft and he kind of sounds like a little puppy. He is so sweet. Hopefully we will find out more this week.

Unfortunately, as we speculated, Ty suffers from the same condition our third son Ben has, namely Hypotonia. Hypotonia is low muscle tone and it particularly affects their ability to swallow. Beth was diagnosed with extra amniotic fluid about 2 weeks before he was born and we knew this was a sign that Ty might also have the same problems as Ben. We quickly switched doctors and hospitals so that Beth would deliver at UC Davis just in case there were any issues. Ben was transported to UC Davis a few days after he was born and spent 6 weeks there. UC Davis has an excellent Neonatal Intensive Care Unit (NICU) and we were already familiar with it.

After an hour of Beth pushing, it was discovered that Ty was posterior (face up) and was not advancing down the birth canal. Beth opted to have him by C-section. Once they pulled Ty from Beth’s stomach, they took him just outside the operating room where the nurses began to clean him up. I waited to hear the loud cry which I would take as a signal that everything was okay. It never came. About an hour later, Ty was in the NICU and the doctor gave me the bad news - Ty couldn’t swallow.

Ty has been in the NICU for 5 days now and things are going pretty well. Given that two brothers have the exact same problem, they suspect that the cause is genetic. Ty is doing well, but requires frequent nasal suctioning to maintain his oxygen saturation. He has a bit of Jaundice too.

He seems quite a bit better off than Ben was and the doctors are taking it slow. They will start the genetic testing and hopefully a long overdue muscle biopsy next week from Ben will provide some new answers. For now, we just have to wait and see how he progresses.

Well, #5 has arrived. It took a bit to get him here but it was all worth it. Ty Andrew Walburger was born at 11:20 pm on July 13th. He came in to this world weighing 9lbs 4 oz. He was 21 inches long and has brown hair. His eye color seems to be a grey color, but that could change. Here are some great pictures of him.

I was cleaning "art supplies" off the table today, about to throw a pile into the recycling and realized that in my hand was a stack almost an inch think of drawings- beautiful ladies in all different scenarios- some with long hair and bangs that covered one eye- some with beautiful landscapes in the background- some that had mermaid bodies- some that had very fancy shoes or outfits.... I also found some with interesting creatures that had legs and arms hanging out of their mouths- some that had dragons with big spikes running down the back-I found colorful snakes and scary sea creatures- I found stories written and scenes from a Wii game drawn out. And I thought about Scott and Natalie giggling together last night as they sat together at the table showing eachother each page and quickly moving to draw another. I thought of the pictures they must have in their minds that they were trying to get on paper and how their imaginations run. I love hearing them talk their play out loud ("Natalie this is a guy who is going to come eat your mermaid" " No Scott! The mermaid is going to swim over to this ocean where these sea creatures will protect her....") I am so glad two of my very favorite people are such good friends....

Well, I finally got rid of the Camry today. It's been with us since it was brand new in 1992. It's covered 225,425 miles and has been a great car. I "retired" the car at the Bureau of Automotive Repair. They gave me $1000 to retire it because it didn't pass the smog test. A few days ago as I put the last bit of gas it would ever need into it, a gas station employee came up to me to tell me about a promotion on a car wax and window cleaner product. I looked at the Camry and then looked at him and said "Does this car look like it needs wax?".
Anyways, I am sure my neighbors are glad I finally got rid of it. Let's hope my other cars are as reliable.

I caught Jack asleep at the computer yesterday. He stayed like this for quite awhile. I like how his hand stayed on the mouse the whole time.