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Monday, July 21, 2008

 

Some Good News

Today Jeanette Harrison (the Clinical Specialist who worked with Ben at UCD) did a feeding evaluation on Ty and confirmed that he can swallow- but it is weak. His suck is stronger, telling us his desire to eat is stronger than his ability to do so. But the fact that he can swallow is great.

Last night he had two apneic episodes (he stopped breathing and they had to use the bag to give him oxygen) due to the fact he was refluxing some of his feeding and got overwhelmed. That is not so great. We have scheduled an "upper GI study" where they will put the dye in and watch how it goes down his esophagus etc. This will help us understand what kind of feeding tube will be best for him. There are several options we are considering- NG (in his nose) G-tube (like Ben has) GJ tube(one that allows the feedings to go in his stomach or lower in his stomach/intestines.) A lot of unknowns still. But overall he is doing well and the Doctors feel he has really improved a great deal over the week.

Comments:
Cute pic of Ty! He looks so much like Scott to me.
 
"he looks just like all the other kids" Meghann Gambee.

That is the first thing she said when we saw a picture of him.

ps--that is a good thing:0
 
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