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Wednesday, July 15, 2009

 

Happy Birthday to me




Ty turned 1 on the 13th and we seriously cannot believe it! This last year has flown. I remember the little newborn he was so vividly and now he is the biggest fat lump of sweet love. (Ok, he is still below 10th percentile but to us he is SO big now.) His little pleased smile just melts us- he works so hard with a serious face to put the lids on things and when he gets it, he immediately grins this contented, pleased smile that just melts us. We did not have cake, we chose instead to have snowcones and ice-cream since Ty can have some of those!

The last few times we tried the "passez muir" valve over his trach (it allows him to breathe in through the trach, but not out, he has to breathe out of his mouth and this allows vocalization) it did not go well- it was really hard for him and he would cough so hard it would just pop off. So it has been a long time since I have tried it. I decided to try it for his birthday (a present for ME really) and we were shocked- he did SO well! We could not believe it, you can tell it takes a little getting used to still- he kind of holds his breath sometimes before forcing it out- but he has been wearing it all day today which is huge. Usually kids with trachs have to build up to that over a period of weeks. (!!!!!!! good boy Ty!)

We are discovering he may be a bit of a whiner or maybe he just likes to hear his voice- he sounds like a whale- I will try to put a short video on . It is so cute. Lots and lots of little voice now and we love it. First time we have ever heard him laugh and hearing him cry... i love it! (does that make me a mean mom?) Losing his voice was the saddest thing to me almost about a trach- so happy he has found it!

HAPPY BIRTHDAY TYBO!

Comments:
first of all, i like how jonathan incorporated the chicken coop into the "wooden play structure!"

does Ty use the walker or just ben?

sounds like fun times!!!

"happy birthday cuz", wished Siena from afar!
 
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